Health Sciences Centre, St. John's Newfoundland and Labrador.
I slept off and on for a few hours. Daughter went to my place and stayed and gathered up items of need. Niece came to meet her at the hospital with more essentials, including a book of poetry. I heard all the noises around me. Triage is a very noisy place but what struck me most was the comradery of the staff. Often raucous and humorous but also so extraordinarily helpful with each other, shouting "you want help with that, here, let me do that, let me lift her head, let me bandage that head for you." I found it extraordinarily moving. Around me were the unconscious, the moaners, the injured, the dying. I looked at my tubes and my wires and my vitals on screen and someone spotted me and came over and said, beaming, "everything is improving". Blood and urine had been taken every hour or so and the kidneys were ticking back up.
Around 6 a.m. I was moved to a kind of holding station with 2 other beds. It soon became evident that the man across from me was dying, his family came in and a priest. the last rites were performed. The woman next to me was youngish, 60 or so, but had post-covid dementia, something not written about much but appallingly evident in ER now, as one of the nurses told me. She wanted to play with the contents of the linen cupboard: incontinence pads, kleenex and wipes and laid them all on her bed and moved them around like a chessboard. She was non-verbal. Her 30-ish daughter was with her, crying, trying to calm her but the nurse stopped her, the playing kept her mother happy and quiet.
I got my first meal halfway through the day. the man across had died and was moved and I cried inconsolably, realizing that his last moments should have been private and were public enough for me to hear it all, the grieving and the prayers. My innards were still in turmoil from the infection. But I managed to get the bland meal down me. I could not manage the next meal. It was revolting. Daughter went away and got me a sandwich which I devoured. This was going well.
Later that night I was moved to a ward in the "real" part of the hospital with a real bed. But when I left the holding station I passed the nursing station where the four staff on duty applauded and cheered me on my way out on the gurney. Which moved me no end. I imagine not many leave there alive and alert. I waved back like a queen. Crying again in gratitude.
The real bed felt like paradise. The large room not so much. Across from me a woman dying. A year older than me according to the hushed conversation of her family. Her granddaughter and the rest of her adult children came in the following morning. Again, tears, overhearing her granddaughter telling her she had good marks in school. The loving words of one son asking his mother if she wanted to go out for one more cigarette - which told me, perhaps, what she was dying from. But I cried once more, pretty inconsolable in Daughter's arms when she arrived. She cried too.
Kitty corner all night was a man raving in dementia. Begging for his mother, then for a nurse, then for his mother. Attendants trying to soothe him, always kind, always calling him mister. It was disturbing how loud he was. Not much sleep.
Next to me, in the morning, a team consulted with the man in the bed next to me, I had a glimpse of him and he looked familiar, a man I might have seen on TV or a film, perhaps. The team were telling him that his liver, kidneys and other organs showed masses, they needed to get into his bowels now and see where else it had spread. He was fighting it, and repeated over and over, "are you sure? are you sure?" Later, I presumed it was his wife who flew by the bottom of my bed and landed at the bottom of his. All the curtains were pulled but sometimes they were dragged open accidentally to give me a glimpse of the real world. I am blessed with good hearing and a voracious curiosity, so could hear their conversation. He eventually asked her "Are you still going to leave me?" And she responded, coldly "Does this change things?" "You'd leave me to die alone?" "How long do you have?" "Maybe three months." "Would I have to take care of you?" "We had thirty years together, what's three months? For God's sake, Rita!" "I'll have to think about it." And with that, she upped and left.
At that moment, another team of medics dropped by me. The chief, who turned out to be a prof at the university, internal medicine, asked me if I minded she had some students in tow I was quite thrilled to see her seven students were all male with her in charge. Quite a reversal of roles. They answered all my questions and she was cautious when she said, if you are still doing well, we will release you later on tomorrow pending the readings and your vitals.
Later a trainee doctor came by and I asked her a ton of extra questions as to what exactly happened to me. She had the time to sit down and explained exactly what had happened. The norovirus had invaded my stomach and my bowls causing constant nausea, diarrhea, eventually dehydrating the body, releasing enzymes in an effort to keep the kidneys going which were shutting down and then in turn shutting down the heart and the oxygen levels. My inherent kidney disease accelerated all of this plus my aging body which had no resistance to infection.
My terminal brother, who was also in a hospital in Cork, was communicating through much of all this through WhatsApp we were so worried about each other. Our last communication was when I said to him :"We're a right pair of langers* aren't we, lying about in our beds, being waited on hand and foot." And he cracked up. I loved cracking him up through our times of misery. "A right pair of langers alright," he responded, "you nailed it."
Later the following day Daughter and I left the hospital. Breathing that air outside, looking at the trees in disbelief, watching the birds, I cried again. Knowing how fortunate I was, how free, how privileged. The parking lot was packed. I was aware, as never before, of how much pain and sorrow awaited all those car drivers and passengers in the hospital behind me. And yet, here was I, leaving the experiences I will never forget.
One of the lucky ones. Dodging death. In awe of the heroes and heroines in the emergency rooms, saving lives, comforting the dying, healing the wounds, finding spaces for the homeless, the doomed and demented, cheering each other on through the countless tragedies. Overhearing the last moments of so many. The real champions of our world in the real Olympics are our health care workers. I'd hang a gold medal on every single one of them any day of the week.
*langers: Cork slang. langer (plural langers) (slang, Ireland, derogatory) Fool; idiot; annoying or contemptible person, langers can also mean drunk.
Here's a Cork song about langers. Some of it is in Irish, in case you're confused.
I play it for my dear brother who died a few short days after I left the hospital while he remained.
Thank you so much. I passed links to all three blogs to my family.
ReplyDeleteThanks for all your comments, CM, they mean so much.
DeleteXO
WWW
You certainly had a time in there, didn't you? I wouldn't want to deal with all of that and I'm sure you were ecstatic to be leaving with your daughter. The long-covid dementia is something I've not heard of, but am not surprised. That virus has destroyed so much. Hopefully you are fully recovered now and feeling good again. Please, stay upright and keep us posted.
ReplyDeleteThank you DKZ, I was totally surprised too but it terrifies me that one of my friends could be exhibiting it now too, she was careless with masking and caught it and was sick for a long time.
DeleteXO
WWW
The song is jaunty. I've not heard of long covid dementia either though I have heard of norovirus. I'm glad you recovered and are now home again. Emergency services staff are heroes indeed for the work they do and their incredible patience with all patients.
ReplyDeleteI can't praise them enough River, such a huge umbrella of care to everyone. The addicts, the demented and the homeless that I'm sure were never on their bingo cards.
DeleteXO
WWW
Nasty stuff, that norovirus. I survived a week of it, and am so pleased you did, too. I am sorry you lost your brother. So good you were in touch. Please keep getting better and keep us posted.
ReplyDeleteI'm just getting over the after-effects Joanne - 6 weeks after 1st symptoms. Still not 100% myself but the nausea has gone. Just tireder than normal. Sorry to hear you had a week of it.
DeleteXO
WWW
My dad has developed some early dementia and it seemd to come on after he had his 2nd covid infection. I had wondered if they were related.
ReplyDeleteYou heard some intense stories while you were there, as well as living your own. How does it feel to be listeninng to those things?
Were you even well enough to feel much?
It's frightening how quickly we can be at deaths door, isnt it? Life is just not as certain as we think it is.
I'm so glad you made it.
It could be Kylie. How very sad for him and those who love him. It felt quite privileged to be overhearing so much, but devastating at times where I cried uncontrollably into my pillow. Seeing the faces of death, seeing the anguish, hearing the last loving words, sensing the loneliness of some caught in grief unable to speak to the loved one. I'm still haunted by so much of it, I've forgotten a lot too as I couldn't write about it without getting emotional. It will stay with me forever.
DeleteLife is so uncertain and I am so very, very fortunate.
XO
WWW
I am so sorry about your brother. Isn't that the second brother gone in a year? The tale of troubles ended well. Sometimes the bigger picture of what ails a patient is never told to them. You had to learn from a trainee doctor.
ReplyDeleteI think I wrote about his diagnosis a few months ago Andrew. So far the only sibling who has left us. The big girl and big boy doctors don't really have the time and I get that, so many patients and rounds in a big hospital.
DeleteXO
WWW
Oh, dear. This is all heart-wrenching. I am so sorry about your brother but glad you are home and on the mend. I work in medical publishing; have done several papers on long Covid and early-onset dementia, mainly in women. It is devastating.
ReplyDeleteOh you are the expert indeed Elle, interesting you said women as the youngish woman beside me was a shock. Further studies need to be done on the long term effects as it's not only dementia. It still shocks me that so many anti maskers are out there.
DeleteXO
WWW
Like you I had a non planned A&E visit, hits you for 6 doesn't it. I'm sort of ok but feeling down, just makes you realise when you're well how much we take good health for granted.
ReplyDeleteI am so sorry this happened to you too Chris. I felt the depression of it all in the past few weeks and the survivor guilt layered on top of that as I am the eldest among the siblings and for my brother, who was #3 to die felt completely out of sync. Add grief on to that bundle of sadness and some days I was amazed that I got out of bed. Dressing myself was a hit or miss thing.
DeleteI do hope you get better soon.
XO
WWW
Just very relieved you're still with us. I'm so sorry you lost your brother.
DeleteThank you so much RJ. These losses are kicks in the gut aren't they? I will never forget what you suffered for your beloved T.
DeleteXO
WWW
What a time you've had and you've described it all in such a way to make it very real. What experiences with both life and death and so much in between. I am sorry for the loss of your brother during all of this, and very relieved and happy that you left the hospital in fine spirits. Such a writer you are! Take good care.
ReplyDeleteThank you Marrge, it took me quite a while to process all of it as I was quite traumatized both my own near death and then my brother's. Still making my *shaky* way through some days with crying jags. But hey, the depth of love is measured in the amount of grief.
DeleteXO
WWW
I returned to read first two and now the ending. First I wasn't in tune on the depth of norovirus so glad you helped me out, scary and how horribly hard. Your poor body put through the ringer. Then to be in the midst all alone, only by the hands of the first responders and health care professionals. I have a family of them, never being able to fully understand their love of medicine. My granddaughter brought her 1st patient back to life and it was a full celebration for her. How lucky we are to have those who can tend to us, and with such love and knowledge. I remember my first bedside family death, everyone gathered. I always felt a privilege and gratitude for that in an eery and creepy kind of way. Later though to feel I was offering something to them or both us, a coming to peace maybe. It's so saddening you got distanced and unable with your brothers bedside goodbye, that will take time along with finding your own strengthing. Good you both held your voices together. Your heart will grow stronger as days pass. This all brought me reminders of what life can hold, how the pain and fear is so real especially alone. It is my biggest fear since childless. I know this had to take so much to share, I hope it brought you healing and closure. What a blessing you are. I'm "wiser" because of you. Hugs and thank you again for allowing us on the reminders of how fragile life is for so many. Much love.
ReplyDeleteThank you CJ for all your comments. I was fortunate to be in the room via blessed technology in his last few hours and spoke to him and his daughter said he squeezed her hand. So he did hear me. I did write a poem which my sister read and I was present via livestream at his funeral.
DeleteHow wonderful that you have all these wonderful medical people in your family.
I knew I had to write about it as it was like a growth inside me that need to get the air and float off even a little into the ether. I am so fortunate with such marvelous and understanding readers. Balm for the spirit.
In some sense we all die alone, don't we? I have thought about that a lot.
XO
WWW
You're here. So glad. What an ordeal. And your brother ... I'm so sorry, Mary. xoxo
ReplyDeleteThanks Kate for all your comments over the last while.
DeleteXO
WWW
Whoops. Kate
ReplyDeleteAgain your descriptions are spot on-. down th the feeling of breathing live air and seeing tress upon leaving the hospital. I am so happy you survived, and yes, those triage workers are the real heroes! Feeling sad once again that you lost your brother, having read your poem ...
ReplyDeleteThank you Charlotte, grief for him can come in waves and an underlying dose of "why me's?" Why did I survive when he suffered so very much. He was a very dear man, kind and non-judgmental and humble amongst the sometimes chaos of his five other siblings. He is deeply missed.
DeleteXO
WWW
So glad you are home now on the mend after such a norovirus life threatening experience. Surviving so much you encountered around you other than your own strictly medical issues alone before finally getting to a room was a challenge in itself. The lengths some people will go to for blog material they can write about -- I don't recommend you repeat this experience! Seriously, do keep gaining strength to write more here.
ReplyDeleteAh Joared you are so kind. I have missed your blogging though I know you've had exhaustion and elections and a horror show soon to unfold in your beloved country. I recommend Bluesky if you're on the swamp of X and the propaganda of Elonia, the new vice president. A harbour of sanity and decency bleeding the followers of not-Twitter dry. It cheers me up. I'm on there with my usual handle wisewebwoman.
DeleteXO
WWW
I'll keep Bluesky in mind, but I'm not attracted to any social websites as most seem to be very poorly run, lacking guidelines, adding to confusion of facts for many readers. Troubling to me that reportedly so many get their news from such sites. I did open a Facebook site years ago but was quickly disillusioned with it, so never really used it and have seldom even gone there.
DeleteSo far so good with Bluesky, I found my people there. It's owned by a woman which makes it different. 25 million subscribers. A haven of sanity in a world gone mad.
DeleteXO
WWW
So glad you're still with us, thanks to the care received and your body's good work in response. Very sorry to hear of your brother's death, but you made him laugh! A good memory in the midst of loss. May you steadily continue to recover from everything. Your gratitude shines and your poem was so very touching. Beautiful. Thank you for sharing your journey. Kim in PA
ReplyDeleteThank you Kim, so very much. I feel the love of my followers every time I come here. Yes, that is a memory I will hold in my heart and also those poor souls whose passing I witnessed.
DeleteXO
WWW
What a horrifying experience - very glad you made it out the other side. I held my breath and shed a tear at your very descriptive words, even though I do not know you, I do know the state of our healthcare system and it's hard to know what comes next. I am so very afraid for when my senior parents reach a point where they may need long term medical help. I don't have the slightest idea where to turn.
ReplyDeleteTake care, will be back again.
Thank you Mandy. I also worried for seniors when I saw what was happening to those in the throes of dementia (nowhere to send them) and also for those near death and the hospices full,
DeleteSeniors are a huge demographic in Newfoundland and I (I'm a senior and a seniors' advocate)have been on media, etc. trying to bring the government to account on all of these issues.
XO
WWW
I can only say how moved I am by this account, and how very grateful for the articulate, sensitive way in which you have recounted it to us. It is a sobering thought that some of us may end our days this way. It is a testament to the staff that they are able to maintain their good humour and their humanity in the face of bedlam and tragedy, repeated over and over again. I do not think it is an exaggeration to say that you have performed an incredible public service by doing this. I hope that some of the staff are able to read it. Please accept my best wishes for a tranquil, peaceful rest of life.
ReplyDeleteOh David, thank you so much for your support. I knew it I needed to write it all down at some point as I find it so therapeutic to offload my experiences and feelings around them. I have been gratified over the many years of my blogging to help in some way with others' tragedies and also to gain friends, though many are, alas, now gone, but also had the courage to share their life experiences too. Including when they were facing death. To feel no longer alone is a gift given to me many, many times.
DeleteXO
WWW
Thank you for sharing this experience and for lauding the medical professionals too. Condolences for the passing of your brother, but wonderful that you were able to share some fun moments. I felt badly reading about the man who died. Dementia is a very scary illness and this week, I learned from two female friends that their husbands have been diagnosed with Alzheimers.
ReplyDeleteThank you Beatrice for your kind words. The hospital staff were saying they had never seen so many dementia patients with nowhere else to go. As many are thinking - and one commenter above said - one of the after effects of Covid can be dementia and I am now witnessing a friend's daughters (57) who is exhibiting signs. Her driver's license has been yanked. She had Covid twice as she didn't believe in vaccines.
DeleteI am sorry about your friends' husbands. It's a terrible tragedy in a family. They don't call it the Long Goodbye for nothing.
XO
WWW