Our hearts can break in so many ways over the years, can't they? Heart breaking is an odd term. A heart can't break, unless it's a heart attack, not emotionally triggered. Though interestingly, the pain can be located near the heart or clench the stomach or go painfully silent with shock as in a brain freeze.
My freshly demented friend came up to my apartment the other night. Her phone wasn't working and she was in pieces.
It turns out it needed a pin number to fire it up. And she had tried many times with various numbers to do so until it shut her down for too many failed attempts. I was "the genius" who could sort it out for her.
I told her we would have to wait 2 hours to try again and I could make coffee and to please tell me the pin number so I could open it for her then. She looked at me, baffled. I wanted to burst into tears. Once upon a time, she was a marketing manager for a large firm, handling government contracts. Three years younger than I.
I said we can't open it without your pin. Please try and think of the four digit number.
Blank. She wanted to access her bank app and had brought all the gear with her, blank cheque, bank card, note from her bank giving her a temporary password to access the app which telegraphed she had had a similar issue with the bank app.
Use that, she instructed me. I said no, this had a long alpha numeric sequence and all we needed for the pin was four numeric digits to get into the phone itself. She read off this bank password again. I jogged her by telling her, her date of birth, her daughter's date of birth?
"I can't remember those!" she laughed.
Maybe tomorrow take the phone to the place where you bought it? I suggested, they could probably crack into it for you?
"I don't want them in my bank account" she huffed.
Slowly I explained to her the difference between accessing the phone itself and accessing the bank app. She smiled at me as if I were a half-wit shaking her head.
And I despaired. I am totally at a loss that I was never at with L my friend who also descended rapidly into dementia and has been in a care home for several years.
I honestly can't believe how rapidly S has descended.
I phoned her the following day and she had absolutely no recollection of the hours she had spent with me the night before. I said, your phone is fixed? "What?"she said,"It's not broken."
It's frankly terrifying. And I'm lost as to how to help.
Edit: Added later
Tonight, she buzzed me on my intercom and arrived in my apartment with a brand new phone (!!). Her granddaughter had set up the new phone and wrote down the passwords but NONE worked. I think her phone provider has scammed her by selling her a new phone. And her granddaughter should know better and have tested the passwords before releasing her into the wild. Needless to mention I don't have her granddaughter's phone number and neither does S with her phone not working.
Stalemate and I'm exhausted. She stayed about an hour but she can't keep track of any conversation. Even a minute later. She wants to return the new phone fpor "not working". I'm hoping her family are realizing she is seriously cognitively impaired.
Oh dear. Disconcerting for sure.
ReplyDeleteTruly heartbreaking. Tonight I had to go through it all again with her.
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Its a crappy disease. My mum seems to be losing her ability to use a phone and gets frustrated and stabs at it, causing her finger to slide on the screen. It is super difficult to trouble shoot for her because the odd things that happen are different every time.
ReplyDeleteIm glad your friend has you, your presence is enough
Thanks Kylie, yes you have lived it too and are still with now your mum. It's just awful and two other dear friends of mine are seriously ill at the moment too which adds to the pressure, I know.
DeleteI did add to the post as she was over again tonight, lost and clueless.
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In my experience, there's no stopping the progression of dementia. But there may be good days when the numbers (and other important numbers & passwords)are remembered & it would be helpful to have a record of them so they can be accessed when she loses capacity. My mom had dementia. It was a tedious process setting up accounts, direct payment plans, etc to allow me (as the POA) to have access & keep her day-to-day business from going into arrears.
ReplyDeleteYes, none Mona, the second dear friend to be so afflicted now. I have no idea how to help her with this password mess as everything I say to her or write down for her is lost a minute later and papers baffle her. I am so sorry about your mum. I am hoping to spare my daughter this. And the lack of awareness there's a problem too with S (L had been very aware which helped) is a huge challenge.
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I guess there is nothing that can be done that trying to help where you can, but not getting upset or angry with frustration. Otherwise, leave it to trained professionals. I've been so lucky that there has never been dementia in my family. I saw it in a neighbour years ago, where he would get very angry. My current neighbour's husband now is in care, and happy as a lark. There was no anger in him, and a lack of awareness of the state of his mind.
ReplyDeleteI don't get frustrated of angry with her Andrew, she has a long distance sister who hangs up on her and that was before she got as she is now. I'm just very gentle. And I don't ask questions either which is the worst thing one can do. She trusts me and like L she is a little child around me. "Please fix my phone" as she passes it to me and waits as if I'm a fairy godmother. Breaks my heart.
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This is so very sad, without her phone she can lose contact with so many people as well as her bank. I hope something gets sorted quickly and perhaps a new PIN could be written downsomeplace where she won't lose it, like a diary or "address and phone" book.
ReplyDeleteOther news, I have lost your email address, can you please email me so I can send you news of Sue (Elephant's Child)?
I think theres a good chance your friend's family are unaware of how much she is impaired for several reasons: she probably has the capacity to present well to them, using all her cognitive powers for a visit and breaking down later. There's also probably denial from the family. I've seen it in my own family and at work recently a daughter told me her mother didnt have dementia but the medical notes said advanced dementia
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