Our hearts can break in so many ways over the years, can't they? Heart breaking is an odd term. A heart can't break, unless it's a heart attack, not emotionally triggered. Though interestingly, the pain can be located near the heart or clench the stomach or go painfully silent with shock as in a brain freeze.
My freshly demented friend came up to my apartment the other night. Her phone wasn't working and she was in pieces.
It turns out it needed a pin number to fire it up. And she had tried many times with various numbers to do so until it shut her down for too many failed attempts. I was "the genius" who could sort it out for her.
I told her we would have to wait 2 hours to try again and I could make coffee and to please tell me the pin number so I could open it for her then. She looked at me, baffled. I wanted to burst into tears. Once upon a time, she was a marketing manager for a large firm, handling government contracts. Three years younger than I.
I said we can't open it without your pin. Please try and think of the four digit number.
Blank. She wanted to access her bank app and had brought all the gear with her, blank cheque, bank card, note from her bank giving her a temporary password to access the app which telegraphed she had had a similar issue with the bank app.
Use that, she instructed me. I said no, this had a long alpha numeric sequence and all we needed for the pin was four numeric digits to get into the phone itself. She read off this bank password again. I jogged her by telling her, her date of birth, her daughter's date of birth?
"I can't remember those!" she laughed.
Maybe tomorrow take the phone to the place where you bought it? I suggested, they could probably crack into it for you?
"I don't want them in my bank account" she huffed.
Slowly I explained to her the difference between accessing the phone itself and accessing the bank app. She smiled at me as if I were a half-wit shaking her head.
And I despaired. I am totally at a loss that I was never at with L my friend who also descended rapidly into dementia and has been in a care home for several years.
I honestly can't believe how rapidly S has descended.
I phoned her the following day and she had absolutely no recollection of the hours she had spent with me the night before. I said, your phone is fixed? "What?"she said,"It's not broken."
It's frankly terrifying. And I'm lost as to how to help.
Edit: Added later
Tonight, she buzzed me on my intercom and arrived in my apartment with a brand new phone (!!). Her granddaughter had set up the new phone and wrote down the passwords but NONE worked. I think her phone provider has scammed her by selling her a new phone. And her granddaughter should know better and have tested the passwords before releasing her into the wild. Needless to mention I don't have her granddaughter's phone number and neither does S with her phone not working.
Stalemate and I'm exhausted. She stayed about an hour but she can't keep track of any conversation. Even a minute later. She wants to return the new phone fpor "not working". I'm hoping her family are realizing she is seriously cognitively impaired.
Oh dear. Disconcerting for sure.
ReplyDeleteTruly heartbreaking. Tonight I had to go through it all again with her.
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Its a crappy disease. My mum seems to be losing her ability to use a phone and gets frustrated and stabs at it, causing her finger to slide on the screen. It is super difficult to trouble shoot for her because the odd things that happen are different every time.
ReplyDeleteIm glad your friend has you, your presence is enough
Thanks Kylie, yes you have lived it too and are still with now your mum. It's just awful and two other dear friends of mine are seriously ill at the moment too which adds to the pressure, I know.
DeleteI did add to the post as she was over again tonight, lost and clueless.
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In my experience, there's no stopping the progression of dementia. But there may be good days when the numbers (and other important numbers & passwords)are remembered & it would be helpful to have a record of them so they can be accessed when she loses capacity. My mom had dementia. It was a tedious process setting up accounts, direct payment plans, etc to allow me (as the POA) to have access & keep her day-to-day business from going into arrears.
ReplyDeleteYes, none Mona, the second dear friend to be so afflicted now. I have no idea how to help her with this password mess as everything I say to her or write down for her is lost a minute later and papers baffle her. I am so sorry about your mum. I am hoping to spare my daughter this. And the lack of awareness there's a problem too with S (L had been very aware which helped) is a huge challenge.
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I guess there is nothing that can be done that trying to help where you can, but not getting upset or angry with frustration. Otherwise, leave it to trained professionals. I've been so lucky that there has never been dementia in my family. I saw it in a neighbour years ago, where he would get very angry. My current neighbour's husband now is in care, and happy as a lark. There was no anger in him, and a lack of awareness of the state of his mind.
ReplyDeleteI don't get frustrated of angry with her Andrew, she has a long distance sister who hangs up on her and that was before she got as she is now. I'm just very gentle. And I don't ask questions either which is the worst thing one can do. She trusts me and like L she is a little child around me. "Please fix my phone" as she passes it to me and waits as if I'm a fairy godmother. Breaks my heart.
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This is so very sad, without her phone she can lose contact with so many people as well as her bank. I hope something gets sorted quickly and perhaps a new PIN could be written downsomeplace where she won't lose it, like a diary or "address and phone" book.
ReplyDeleteOther news, I have lost your email address, can you please email me so I can send you news of Sue (Elephant's Child)?
It's vry alarming and I am upset with her g-daughter for not testing the numbers. Then again, my friend doesn't make any sense at all and can't keep track of a sentence ago. I am really stressed by it all. I have heard from Sue directly River. Thank you.
DeleteThank goodness she's home.
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I think theres a good chance your friend's family are unaware of how much she is impaired for several reasons: she probably has the capacity to present well to them, using all her cognitive powers for a visit and breaking down later. There's also probably denial from the family. I've seen it in my own family and at work recently a daughter told me her mother didnt have dementia but the medical notes said advanced dementia
ReplyDeleteKylie thanks for your insight. I think the g-daughter was treating it like a joke as the note had large caps and laughs with the passwords on it (which didn't work). But I understand the denial is a huge element in families.
DeleteI had to deal with L's son directly at times and enforce how severe his mum was.
I am exhausted though and grieving her loss.
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One of Miriam’s sisters is dealing with full blown dementia and another is descending the staircase. We also have good friends, especially the male, a retired university professor, becoming more befuddled by the day. It is distressing to be sure, and not without consequences for us.
ReplyDeleteIt's absolute tragedy David, but only for the loving bystanders. My friend jokes about her "short term, ha-ha" in a protective way. But they have gone bye bye to those who love them. I am so sorry Miriam is effected also by her sister and you both by your friend. The rapid descent I find breathtaking. Not enough is written about it. I think I mentioned after my hospital stay how many of the medical staff were talking about the flood of dementia cases after Covid infections. My friend had Covid. I am lucky as I am a "Novid". Never had it - took precautions. there has to be a link, still not researched enough except anecdotallly.
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It’s important that she has access to her money but I think she will need to be weaned off her phone.
ReplyDeleteWith her diminishing awareness she could be vulnerable to phone scammers.
My friend began to struggle with her phone, not replying to calls and at a loss as to how to contact anyone, even when their phone numbers were in there.
Does anyone have Power of Attorney on her behalf?
I doubt it YS. And you are absolutely right, the failure of the ability to manage the phone is a flashing sign that the decline is evident. Her daughter has abused her for years, clearing out her pension fund for her own home renovations and yelling at her if she needs help. S is quite scared of her as she also punishes S for bothering her by driving like a maniac terrifying S. it's a dreadful situation.
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This was hard to read. That poor lady. And poor you, trying to make sense to her befuddled mind. I have not had to deal with dementia in any friends or family but I think that's rare theses days. Daddy did see some interesting things when his poor heart was failing and starving hid brain of oxygen, but he never lost his grip on reality--he knew what he was seeing wasn't really there.
ReplyDeleteI feel for you, and admire how you have tried to help. It must feel so sad and stressful.
Thanks for understanding GS. she has been very good to me over the years, a true friend, loyal to the nth degree. With her family so careless and often cruel I do my best while also realising that she is not my problem to fix which draws a solid line on how I can help, I will call on a wellness check resource if things get really out of hand with her and she's a hazard to herself and others.
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A link between Covid and pprogression of dementia - I think you hit onto somthing here. And either you did not mention it, or I did not notice it.
ReplyDeleteMy mum was demented, slightly, slowly progressing, but still functioning OK until she had Covid; from there it was fast downhill. I did not see the connection till now!
I think the same has happened with S. Her decline triggered by Covid and evidenced by hospital personnel when I was there. Frightening really Charlotte. These viruses can cause a wealth of damage to our internal organs including our brains. I am so, so sorry about your mum. A terrible thing to witness. And we carry the weight of our care for these loved ones.
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My grandmother had dementia. My grandfather signed the final paperwork to have her moved to a nursing home; he just couldn't care for her at home anymore. That night, he had a massive heart attack and died. I don't remember what I did 2 days ago but I can recall every detail of that night, rushing to their home, the ambulances, etc. It was the worst night of my childhood. My grandmother came to live w/us for a few months before her spot was ready at the home. For people who have never seen dementia up close, it is heartbreaking.
ReplyDeleteOh Elle, what a terrible time for you and for your loved ones. There is so little understanding of it for those who haven't been up close and personal with it. My maternal grandfather had what they then called "second childhood" and I was horrified (I adored the man) when I was about 10 and he spent all day counting buttons he collected in a drawer in Irish. He'd pull us into a bedroom and pull out the drawer and pour out the buttons on to the floor and put them all back one by one. I remember just about freezing when I kept calling him to go out with me and he just ignored me and kept counting. First time I witnessed it. Thankfully, so far my direct family have escaped this horror. But my close friends, sadly, no. And my heart breaks every time. We don't talk enough about it.
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Abuse of elderly dementia sufferers is happening too often here too - some people just can’t resist taking advantage of vulnerable people.
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