Wednesday, February 05, 2020

Updaterama

So it turns out my lung didn't heal so that explains the massive exhaustion and feeling like death on a platter. It's a relief to know this. Seriously. I can never shake off the feeling of being a boring old crank given to organ recitals and a long list of her medical staff and appointments. So back on diuretics and doc spots a suspicion bump on my face so will burn that off in a couple of weeks once I'n feeling better. Blood readings improved slightly and his gut feeling is I am not bleeding internally but will have me see the internist to confirm that. And oh yes PVD in legs has not worsened so no stents in my future.

But the best part of this? And a big item on the gratitude list, was that a friend texted me and said meet me for coffee after the doc visit and when I arrived at our local cafe there was a little gang of friends waiting for me to share the latest on the medical front. I was incredibly moved. It meant more than I can say.

Niece was over today to share lunch and writing. Butter chicken, rice, Greek salad, cheese and fruit platter, sweet potato crackers. It was a marvelous 4 hours as we had ourselves a bit of a knit too. And made suggestions to each other on our writing.

My doc had never heard the Irish phrase "I lost the run of meself" which I really had in the last few weeks with the awful breathing and palpitations. He absolutely loved it for its accuracy in describing a down slide in health. In Newfoundland, many Irish phrases have crossed the Atlantic but not that particular one. I sure had lost the run of meself. And how frightening that is. Wilderness indeed.

I am very well taken care of by doc. And I told him this as we parted and he responded that my words and the words of patients like me, sustain him through the mountains of paperwork he has to complete late at night.

I only plan one item (social, activity) a day at the moment to save my energy and try and get well again. I am paying attention.

And here's a song by The Once - their voices are haunting and I think of my grandparents and their kitchen when I hear it.




25 comments:

  1. I have not heard The Once but have just listened to them and they are wonderful. Thanks for sharing.

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  2. No one does haunting quite like the Irish, that was lovely, sweet and sad too.
    I'm sorry to hear your lung didn't heal, is there any other treatment you can try to help that happen? I love the phrase "I've lost the run of meself". I've never heard it before, but it fits so well with what you've been going through.
    Your lunch with niece and friends sounds like an afternoon well spent in good company.

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    1. Yes, apparently a permanent low diuretic may be the forward plan, depending on how the cornucopia of drugs I'm on behaving themselves.

      I feel very lucky and grateful at the moment.

      XO
      WWW

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  3. How sweet your friend was to gather friends to hear your news over coffee. That song is hauntingly beautiful, I will look for more songs by them.

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    1. Her voice has that haunting quality Terra. I can't get enough of it.

      XO
      WWW

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  4. Thank you for the updatarama. If that isn't a word it should be. If, I a stranger, get misty at the gathering of your friends post doc visit, I wonder you held it together. What a truly lovely gesture.
    And hooray for your special niece and thank you for that haunting song.

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    1. I found it hard not to burst into tears, it meant so much to me.
      Niece is really special. I adore her.

      XO
      WWW

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  5. Thank you for the update. It makes me happy that you're taken good care of by all.

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    1. Thank you Charlotte, I love that my virtual blog friends are on side with me too!

      XO
      WWW

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  6. Your health news seems positive. I realise there is no certainty right now but it's nice to relax a wee bit.

    A surprise coffee meet , butter chicken and knitting can't really be beat ❤️

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    1. You would be most welcome at my table Kylie, you'd fit right in!

      XO
      WWW

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  7. Good to know there's an explanation for the exhaustion. And how lovely that your friends organised a little get-together.

    "losing the run of yourself" is a nice phrase. Here it seems also to mean getting carried away or getting conceited.

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    1. That must be an NI interpretation but I can see how it could be construed that way. There is a response to that, in Cork anyway: "Would you ever get over yourself."

      XO
      WWW

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  8. That is a sweet song. I am so glad you have friends who deeply care about you. That was very nice of them to greet you at the restaurant. You are also lucky to have such a caring niece and doctor. Blessings!

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    1. Thank you Gigi for your kind words.

      I feel truly fortunate. Being ill has a great gift in that it really sorts out your friends and supporters.

      XO
      WWW

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  9. wonderful to read your update … so good to come out of the tunnel, isn't it? Hugs.

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    1. I really thought I had hit a brick wall Regina so this makes it all the sweeter!

      XO
      WWW

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  10. So nice for a group of friends to meet you and no stress about it as you didn't know in advance. The Irish phrase is not one I have heard before but I like it.

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    1. It really was Andrew and so unexpected too. It summarizes how we feel on some days losing the run of ourselves.

      XO
      WWW

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  11. No gratitude more profound than friends gathering to listen and celebrate, plus a sweet niece to spend an afternoon. I wish you were recovering, but I have faith and hope in your nice doctor. And thanks for the lovely group and song.

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  12. "I lost the run of meself" is new to me, too, but aptly describes what I've experienced. Delighted your friends surprised you after your medical appointment -- am sure you would have welcomed their support.

    Lovely haunting song, indeed!

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  13. Meant to add, wonder if you have access to some respiratory therapy to help you maximize your breathing and adapting to issues you might encounter? Wishing you all the best as sounds like you're coping well on your own.

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  14. Good friends and family makes all the difference in one's recovery from illness. It is wonderful that you have established a good relationship with your doctor which too makes a lot of difference in recovery.

    I see only one serial on TV and that is about a historical character dating back to the late nineteenth century. Kerosene and wick lamps are shown and I am always taken back to my village days without electricity but with kerosene lamps called hurricane lamps as they would burn even in the strongest of winds and also petromax lamps with brigher lighting. This song took me back to those again. Thank you.

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  15. Yeah for friends and a doctor who listens;) I have a knitting project planned for the first time in many years mostly because I'd like to have something to pick up/put down. Between you and "Mason Dixon" knitting blog I've seen enough gorgeous color and pattern to feel the itch to knit again.

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