Showing posts with label chronic. Show all posts
Showing posts with label chronic. Show all posts

Friday, June 23, 2017

Energy


I shepherd my energy carefully these days as I feel I'm falling behind. So the blog gets shoved aside for another day.

Tourism is a huge benefit to my life. Both the engagement with my PGs (guests) which feeds my intellect and the financial benefit which I rather desperately need.

Many ask me how I keep going with my health challenges and the demands of still having to make a living in my seventies.

My answer is: carefully (see first sentence). It would be fairly catastrophic if my health worsened now, as inevitably it will. I need to keep chugging until September when my load will lighten considerably, fingers crossed.

Therefore I prioritize. We just finished the Living with Chronic Disease series of workshops yesterday and I can't praise it enough. I've been asked to be a facilitator in the future but I've shelved that for now. I'm becoming more skilled at the art of saying NO.

I learned so much about accepting where I am and dealing a fresh deck of cards which encompasses my heath challenges, not focussing on what I used to do, but focussing on the now and making Action Plans for each day that are manageable and achievable. I had been thinking in the light of what I used to be able to accomplish but recognise now that I was doing far too much as a result and burdening myself with unrealistic expectations of what my day should be packed with and beating myself up for failure to do so.

The art of pulling back and the power of both Now and No are my new best buddies.

One of the incredible results of the workshop was our youngest participant (in his mid thirties) shared yesterday that his last hope was committing to the workshops for all 6 weeks. If nothing changed for him, he had planned suicide. We were all crying after he spoke. He has many challenges including his young spouse in a wheelchair (boy, perspective!) and he had absolutely no hope. Now he's attempting to live within his limitations and try one new thing every week and list his achievable goals.

I feel I've turned some kind of corner too, not clear on what it is yet. But more will be revealed, I'm sure.

I just know I feel so much more alive now.

And ready.

Saturday, June 03, 2017

Update

Strong coffee, a good book, fresh design on the needles....what more, seriously?


My friend T had his surgery on Thursday, a quadruple bypass, and is astonishing everyone with his speedy recovery, even his surgeon. He's sitting around for a few hours, all the tubes are out and he wants to go home. So next Wednesday is his release into the real world.

The Living with Chronic Disease series of workshops is marvellous. I was resistant to getting a handicap sticker for my car (only really, really challenged people get those!)and was encouraged to bite the bullet. Often I have to park a distance away from my destination and my legs seize after a few minutes walking and the pain, m'dears. So yeah, I agreed to taking my walking pole when out walking, requesting the handicap registration from my doctor (done and mailed) and checking out a folding walking stick from a local shop which another participant recommends. You just never know, she says, when you might need it.

One of the important things I noted in this workshop is that participants with hobbies are the happiest. Those with no passion or have retirement thrust upon them with nothing to fill the time apart from chores and TV are the most anxious. Gardeners, knitters, fishers, quilters, wood-workers are the most fulfilled.


We commit to certain things each week (this week mine is 1,000 steps a day and finishing a shawl and continue to toss excess from my house)plus some exercises we are all attempting, even finger exercises which can be painful. My knitting keeps my hands fairly flexible but my legs and back seem to be worsening so I am attempting more.

New York and Quebec tourists are arriving tomorrow, both holiday rooms in my house are booked which is good news.

Tuesday, May 23, 2017

Label


Labelling, self-labelling I mean, can be extraordinarily useful. I was struggling with the Black Dog - and thank you so much to all those who commented in support. It is remarkable how the ether world and caring others in the real world can offer so much comfort and understanding.

A man I worked with said to me he was going to this six part workshop on chronic conditions.

chron·ic

/ˈkränik/

adjective
adjective: chronic
(of an illness) persisting for a long time or constantly recurring.
"chronic bronchitis"
synonyms: persistent, long-standing, long-term; More
incurable;
immedicable
"a chronic illness"
antonyms: acute
•(of a person) having an illness persisting for a long time or constantly recurring.
"a chronic asthmatic"
•(of a problem) long-lasting and difficult to eradicate.
"the school suffers from chronic overcrowding"

synonyms: constant, continuing, ceaseless, unabating, unending, persistent, long-lasting;

I asked him what his condition was if he felt comfortable telling me and he said "Anxiety" - he's had this basically non-stop since brutal orphanage days (Five years old at incarceration - Sweet Jaysus).

I thought for a minute and said: I have a chronic condition too.

And then: I think I'll go too.

So there. Just affixing the label to myself I felt a load lift off me. And the workshop? I can't say enough about it. 2-3 hours each. All of us (Including the two facilitators) have chronic conditions. All of us suffer periodic depression. All of us had difficulty labelling ourselves.

There is such solace in just saying it out loud to a bunch who totally understand. And boy, are there degrees of "chronic".

I got off lightly.

More on this in the next few weeks as I learn more.